Ask a specialist

Having difficulty getting answers? You're not alone.


Accurate, relevant information about symptoms, treatment and everyday life with Superficial Siderosis can be a bit tricky to come by.


Thankfully, expert Dr Michael Levy has been sharing his expertise on the Silent Bleed website for a few years . Based at Johns Hopkins in Baltimore, he’s considered a world authority and he's the physician behind the recent Ferriprox trials. We're committed to supporting his ongoing research.

If you’d like to read about a particular subject, please browse the subject headings below. If there’s something specific you need to find out about, please use the search facility and then use your internet browser software to search the individual page. There’s a lot of information, which we do our best to sift, sort and edit: and although we’re on a massive mission, we’re still just a tiny team. So we apologise for the legwork but we promise, it’s worth it and we remove all personal details so individuals’ privacy is protected at all times.

Still can't find what you're looking for? We’re all different, on a different journey with different circumstances, physiology and access to information. If having been through our pages, you haven’t got the answers you need, please send us your question and we’ll forward it to Dr Levy. To save him some time and effort, we tend to send him questions in batches of ten, so if it takes a little time, don’t worry.

And keep checking back - any updates we have, you'll find under Latest Questions.

Whether you have Superficial Siderosis or you’re supporting someone with the condition, we’re here to help you get the answers you need to make informed choices about the way forward.

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Get Social with us!

Our Facebook group is a kind and compassionate space for people with superficial siderosis to share the ups and downs of everyday life - search 'superficial siderosis - the silent bleed' and send a request to join.

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Registered as a Charity in England and Wales since 2016

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The reason we exist is to make our voices heard about superficial siderosis, so please feel free use the text on this site as you need to - all we ask is that you clearly mention us as the source and that you drop us a donation. Please ask permission to use photographs because many of them feature our members and it's only fair to ask them first. Many thanks.