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Ask a specialist

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Struggling to find answers? You're not alone.

Finding accurate and relevant information about symptoms, treatment, and everyday life with Superficial Siderosis can be somewhat challenging.

Thankfully, expert Dr. Michael Levy has been sharing his expertise on the Silent Bleed website for the past few years. Based at Massachusetts General, he’s a respected authority and the physician behind the first deferiprone trials. We're committed to supporting his ongoing research.

If you'd like to read about a particular subject, please browse the subject headings below. If there's something specific you need to find out about, please use the search facility at the top of the page and then utilize your Internet browser software to search the individual page.


There's a lot of information that we endeavor to sift, sort, and edit to the best of our ability. Despite being on a significant mission, we remain a small team. Therefore, we apologize for any inconvenience caused, but we assure you, it's worthwhile, and we ensure the removal of all personal details to safeguard individuals' privacy at all times.

Still can't find what you're looking for? We're all different, on different journeys with varying circumstances, physiologies, and access to information. If, after browsing through our pages, you haven’t found the answers you need, please send us your question, and we'll forward it to Dr. Levy. To save him some time and effort, we tend to send him questions in batches of ten, so if it takes a little time, don’t worry.

And keep checking back - any updates we have will be found under Latest Questions.

Whether you have Superficial Siderosis or are supporting someone with the condition, we're here to help you get the answers you need to make informed choices about the way forward.

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