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Away from the testing, research and medication, there's everyday life.

There's family, career, community, going to the cinema and making sure there's enough milk for breakfast. Superficial Siderosis gets in the way of life while you're not looking.

Contributed to by guest bloggers and in-house writers alike, this page is dedicated to the small things we do every day to fight back and battle on regardless.

February 26, 2019

What rare doesn't mean

The last day of February is usually the 28th but every four years, it's the 29th - this is a rare day.

No wonder then, that it was the date chosen to celebrate Rare Disease Day every year (and yes, when it's not a Leap Year, it falls on the 28th).

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Registered as a Charity in England and Wales since 2016

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