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Away from the testing, research and medication, there's everyday life.

There's family, career, community, going to the cinema and making sure there's enough milk for breakfast. Superficial Siderosis gets in the way of life while you're not looking.

Contributed to by guest bloggers and in-house writers alike, this page is dedicated to the small things we do every day to fight back and battle on regardless.

March 15, 2019

With a promise of an alert card, a care coordinator and better research, will the UK Strategy for Rare Diseases provide better outcomes for people with superficial siderosis?

March 4, 2019

It was Rare Disease Day last week. Exciting developments for Superficial Siderosis included Living with Superficial Siderosis' deputation to Capitol Hill for research funding and another one thousand pounds presented to Dr Michael Levy for his important research (with...

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Our Facebook group is a kind and compassionate space for people with superficial siderosis to share the ups and downs of everyday life - search 'superficial siderosis - the silent bleed' and send a request to join.

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(c) The Silent Bleed 2019

Registered as a Charity in England and Wales since 2016

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The reason we exist is to make our voices heard about superficial siderosis, so please feel free use the text on this site as you need to - all we ask is that you clearly mention us as the source and that you drop us a donation. Please ask permission to use photographs because many of them feature our members and it's only fair to ask them first. Many thanks.