Jason's story

 Jason's battle with Superficial Siderosis

My battle of Superficial Siderosis possibly starts at 1982 when I had my first brain haemorrhage, however recently 2009-12, I had a second. Somehow blood from the haemorrhage managed to get into the cerebral fluid which runs through my vertebrae, iron from the blood is causing problems in both motor and cognitive skills (to put this simply, imagine rows of cables without insulation close together and liquid iron spilt on them, they would short out causing the lights to behave in a manner they should not).


In America the use of Ferriprox (Each tablet contains 500 mg deferiprone), is indicated for the treatment of iron overload, check out my blog where I talk about clearing the iron from my blood including the use of Ferriprox. At this time, the effects from the Superficial Siderosis are; Ataxia, Migraines, Memory loss (short and long term), Tinnitus, 75% hearing loss, Muscular tremors, Double vision, Video vision (what I see bounces when walking)  and constant tiredness.


Get Social with us!

Our Facebook group is a kind and compassionate space for people with superficial siderosis to share the ups and downs of everyday life - search 'superficial siderosis - the silent bleed' and send a request to join.

  • Facebook Social Icon

(c) The Silent Bleed 2019

Registered as a Charity in England and Wales since 2016

Text reproduction and sharing


The reason we exist is to make our voices heard about superficial siderosis, so please feel free use the text on this site as you need to - all we ask is that you clearly mention us as the source and that you drop us a donation. Please ask permission to use photographs because many of them feature our members and it's only fair to ask them first. Many thanks.