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Join date: Nov 12, 2020
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Mar 15, 2019 ∙ 4 min
The NHS proposals for rare disease care - what's next?
With a promise of an alert card, a care coordinator and better research, will the UK Strategy for Rare Diseases provide better outcomes for
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Mar 4, 2019 ∙ 3 min
Beyond politics: the reality of living with a rare disease
It was Rare Disease Day last week. Exciting developments for Superficial Siderosis included Living with Superficial Siderosis' deputation...
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Feb 26, 2019 ∙ 2 min
Fighting the numbers game
What rare doesn't mean The last day of February is usually the 28th but every four years, it's the 29th - this is a rare day. No wonder...
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Amanda Fearn
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