What we do

If you've been diagnosed with the rare neurological condition Superficial Siderosis, you're one in several million - that's how rare it is.

And if you're struggling to find relevant information, then you've come to the right place. Find out more about Superficial Siderosis, view a webinar with a specialist or you can even download or order leaflets to share with family, friends and physicians. There's also information on symptoms, medication and life with Superficial Siderosis on our Q&A pages with Dr Levy, to help you make decisions about the best way forward.

Our aim is to drive research, raise funds and act as a hub for information and support

Anyone who has Superficial Siderosis has been through so much already - head trauma, stroke or neuro surgery.

Let's help these survivors get the support and treatment they deserve.

Information | Support | Research | Community