What we do

If you've been diagnosed with the rare neurological condition Superficial Siderosis, you're one in several million - that's how rare it is.

And if you're struggling to find relevant information, then you've come to the right place. Find out more about Superficial Siderosis, view a webinar with a specialist or you can even download or order leaflets to share with family, friends and physicians. There's also information on symptoms, medication and life with Superficial Siderosis on our Q&A pages with Dr Levy, to help you make decisions about the best way forward.

Our aim is to drive research, raise funds and act as a hub for information and support

Anyone who has Superficial Siderosis has been through so much already - head trauma, stroke or neuro surgery.

Let's help these survivors get the support and treatment they deserve.

Information | Support | Research | Community

Get Social with us!

Our Facebook group is a kind and compassionate space for people with superficial siderosis to share the ups and downs of everyday life - search 'superficial siderosis - the silent bleed' and send a request to join.

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(c) The Silent Bleed 2019

Registered as a Charity in England and Wales since 2016

Text reproduction and sharing


The reason we exist is to make our voices heard about superficial siderosis, so please feel free use the text on this site as you need to - all we ask is that you clearly mention us as the source and that you drop us a donation. Please ask permission to use photographs because many of them feature our members and it's only fair to ask them first. Many thanks.