Living with Superficial Siderosis

 

Well-researched, up-to-date and packed with both medical content and discursive commentary on the highs and lows of life with Superficial Siderosis. Rori Daniel's site and blog is an excellent read and an important resource.

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Superficial Siderosis New Zealand

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Where it all started. Before The Silent Bleed, there was Dave Hill and his informative blog. We're all indebted to Dave's dedication.

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Here are some useful links and recommendations to sites relevent to SS

 

Facebook groups;

Superficial Siderosis - The Silent Bleed

Superficial Siderosis

DEAFLAND GROUP

Superficial Siderosis of the Central Nervous System

Friends of Superficial Siderosis Sufferers Unite

Websites;

Right Diagnosis 

Superficial Siderosis Network

Alfi 

 

VIP

 Michael Levy, MD, PhD.

Assistant Professor, Johns Hopkins University

Director, Neuromyelitis Optica Clinic

600 N. Wolfe Street

Pathology 509

Baltimore, MD 21287

443-287-4412 phone

443-287-4062 FAX

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If you've come across webpages that you think we should add, please let us know. Or perhaps you're a blogger, writer or you're part of a Superficial Siderosis community in need of a little promotion - simply drop us a line.