New questions not yet answered

We seem to be up to date at the moment but please check back here for new questions before they get sent off to Dr Levy.  Once we have a batch of ten, we email them to him and he kindly replies with answers.


If you've read through the all the Q&A pages and you've not found the information you are looking for, please use the form below.  It will come through to us and we'll send it on to him, completely anonymously, when we have a batch of ten.


We may sometimes edit your questions to make them easier for others to read and we'll take out any personal references or names before posting them here.


You never know, your question might help someone else too.


We usually send questions to Dr Levy in sets of ten, so it may take some time for your comments to be posted and please make sure your questions refer to Superficial Siderosis, treatments and symptoms only. Of course, always refer to your own physician in the first case.


Many thanks.


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Our Facebook group is a kind and compassionate space for people with superficial siderosis to share the ups and downs of everyday life - search 'superficial siderosis - the silent bleed' and send a request to join.

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Registered as a Charity in England and Wales since 2016

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The reason we exist is to make our voices heard about superficial siderosis, so please feel free use the text on this site as you need to - all we ask is that you clearly mention us as the source and that you drop us a donation. Please ask permission to use photographs because many of them feature our members and it's only fair to ask them first. Many thanks.