Adapting to Life with MS

As the years passed, Mary's MS seemed to stabilise. She continued with her annual neurologist check-ups, always hoping for good news. However 2014, new symptoms emerged, eventually leading to a startling discovery.

Vertigo Attacks and a Pivotal MRI

Life continued, with Mary adapting to the persistent ringing in her ears. Then, in 2022, a new and alarming symptom appeared: severe vertigo attacks.

Concerned about these new developments, Mary's neurologist suggested another MRI during her annual review in 2022. This routine scan would be a turning point in Mary's medical journey.

A Shocking Discovery: Superficial Siderosis

A month after the MRI, Mary received a letter that would change everything. Not only did the scan show her existing MS, but it also revealed something entirely unexpected – Superficial Siderosis (SS).

The Missed Diagnosis

Desperate for answers, Mary requested another appointment with her consultant. It was during this meeting that she learned a shocking truth: the SS had been visible on her MRI from 2015, but no one had identified it at the time.

Further scans provided more details about Mary's condition. The SS primarily affected her cerebellum's superior surface, particularly around the vermis. The source of the bleed was identified as an anterior, extramural fluid collection in her spine between C6 and C7, extending down to T1 and T2, where there was also a herniated disc.

The Challenge of Dual Diagnoses

With two complex neurological conditions to manage, Mary found herself in a unique position. Distinguishing between MS and SS symptoms became a challenge, adding a new layer of complexity to her health management.

Finding Joy Despite Challenges

Despite the dual diagnoses, Mary's spirit remains unbroken. Her list of symptoms is long – tinnitus, hearing loss, vertigo, sensory loss, neuropathic pain, muscle weakness, fatigue, exhaustion, sight problems, and tremors – not to mention arthritis and back pain that come with age. Yet, Mary faces each day with remarkable positivity.

Mary's journey highlights the importance of thorough and attentive medical care. The missed diagnosis of SS in 2015 serves as a reminder of the need for vigilance in interpreting medical imaging, especially for patients with complex conditions like MS.

Preparing for the Future

As Mary prepares for her upcoming review, she faces the future with apprehension and hope. The question of whether to pursue surgery for the spinal leak remains open, with doctors currently favouring a conservative approach as long as her condition remains stable.

Mary's story is one of resilience, adaptability, and the power of a positive outlook. Despite facing not one but two challenging neurological conditions, she continues to find joy in her daily life and draw strength from her support network.

Inspiration for Others

As Mary continues her journey with MS and SS, she serves as an inspiration to others facing similar challenges. Her story reminds us of the complexity of neurological disorders, the importance of comprehensive medical care, and the incredible resilience of the human spirit.