Our Superficial Siderosis Facebook Groups
We have created for you several Facebook groups:
Superficial Siderosis-The Silent Bleed
Strictly for those that have SS or their advocate
Events page
A Support group open to all upon joining request, and answering questions
Join if you would like to hold an event or be part on of one
The Silent Bleed management page
Management only
If you have SS and would like to buddy up
with someone local to you that has SS
Superficial Siderosis Advocacy
If you have SS and require Advocasy, contact us here,
If you wish to offer Advocasy, join this page
If you have concerns that you may have SS yet do not know a neurologist that is aware of SS, join this page and one of our team will contact you to help you find one
Links from the newsletter articles for discussion
Key Characteristics Classical Infratentorial Superficial Siderosis (iSS Type 1)