Stay Connected: Join Our Facebook Groups!
At The Silent Bleed (TSB), we believe in the power of community. Whether you’re living with Superficial Siderosis (SS), supporting a loved one, or simply want to help raise awareness — there’s a place for you in our growing network.
We’ve created a number of Facebook groups to help connect, support, and inform those affected by SS. Each group has a unique focus, and we invite you to join any that match your interest or role. Here's how you can get involved:
For Those Living With SS or Their Advocates
Superficial Siderosis – The Silent Bleed
A private group exclusively for individuals with SS or their chosen advocates.
Join here
Raising Awareness & Events
WAKE UP to the Silent Bleed
A general awareness and events page to help spread the word about SS.
Visit the group
Silent Bleed Volunteers
Want to host or participate in an event? This group is for you!
Join the team
General Support & Friendship
Friends of TSB
An open support group for anyone interested in SS. Just answer a few questions to join.
Join the community
My SS Buddy
Looking to connect with someone local who also has SS? This buddy system helps you find support near you.
Join here
Advocacy and Support Services
Superficial Siderosis Advocacy
Need advocacy or want to become an advocate? This is the place to connect.
(Please search for the group on Facebook)
Find My Neurologist
Need help finding an SS-knowledgeable neurologist? Join this community-driven resource.
Get help here
Internal & Admin Groups
The Silent Bleed Management
For internal management and administrative purposes only.
Access here
Why Join Our Groups?
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Get support from people who understand
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Raise awareness of a rare condition
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Share and access valuable information
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Build lifelong friendships and support networks
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Take action and make a difference
Together, we can amplify the voices of those affected by Superficial Siderosis and create a stronger, more connected community.
Join us on Facebook today and be part of the movement.
#SilentBleed #SuperficialSiderosis #TSBCommunity #GetInvolved