The Power of Community


We're proud to publish the first of many collaborations with blogger and Superficial Siderosis activist Rori Daniel.

Fear is a powerful emotion. Anxiety shows no sympathy. Fear destroys if you give it power. A rare disease diagnosis, especially one as unknown as Superficial Siderosis, forces you to face your worst fears. It’s hard. We are not built to face fear alone. Thankfully, early patients and caregivers sparked the creation of our most powerful resource. Community.

Your future has changed so how should you plan? How is your family going to be affected? Where should you look for care?. Chronic illness brings co