The Superficial Siderosis charity

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Superficial Siderosis (SS) is a rare neurological disorder that often goes unrecognised and underreported. This page serves as a tribute to those who have lost their lives to this devastating condition and aims to raise awareness about the critical need for accurate reporting and increased research.

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Why This Page Exists:

1. To honour the memory of those who have battled Superficial Siderosis

2. To highlight the real impact of this rare disorder on individuals and families

3. To emphasise the importance of proper diagnosis and documentation

 

A Call for Accurate Reporting:

When Superficial Siderosis is not recorded as a cause or contributing factor in a person's death, we lose valuable data that could drive research and improve treatments. Each undocumented case represents:

- A missed opportunity to understand the progression and impact of SS

- One less reason for researchers and funding bodies to prioritise SS studies

- A gap in our knowledge that could delay potential breakthroughs

 

By creating this remembrance page, we hope to:

1. Encourage families and medical professionals to ensure SS is appropriately documented

2. Demonstrate the urgent need for more research into this condition

3. Create a supportive community for those affected by SS

• We invite you to share the stories of your loved ones affected by Superficial Siderosis and add their names to this tribute*. Together, we can honour their memory and work towards a future where this condition is better understood, treated, and ultimately cured.